By letting your treatment team know what information you want and when, they can better meet your needs.

Information from your treatment team

To make choices about your treatment and prepare for it, you’re going to need information. Some people want to receive a lot of information about their cancer and treatment options, while others want only a little information at a time.

By letting your treatment team know what information you want and when, they can better meet your needs. You can let them know the level of detail you’d like and the format you’d prefer. For example, you may like to receive some information in person, or have leaflets to take away and read when you feel ready. The amount of information you want may change over time.

You can request information that meets your specific needs if you have a physical, visual or learning disability.

You can also request information in other languages and have an interpreter or advocate if you need. An advocate acts in your interests and helps to ensure your needs are understood and met.

Other sources of information

You may also get useful information from:

  • Leaflets, booklets, and websites from the NHS, charities and other organisations
  • Information events run by charities and other organisations
  • Patient support groups (face-to-face groups, telephone support, online forums and social media groups)
  • Other patients with secondary breast cancer

Helplines

In this guide, we give sources of further online information, usually at the end of each page.

Tips and advice

Advice on getting the best care

To help you get the information you need, you may want to:

  • Write a list of questions before each appointment, so you don’t forget to ask anything on the day (there are example lists available from Macmillan Cancer Support)
  • Have a family member or friend join your appointment, so they can help you remember key information
  • Don’t be embarrassed to ask for information to be repeated or explained in a different way.
  • Ask permission to audio record your appointment (on a mobile phone for example) or write key points down, so you can refer to them later
  • Check who you can contact when you have questions between appointments
  • Ask where you can find further information

Information Standard

Information last reviewed: October 2015

Next review due: October 2018

Breast Cancer Now's health information is covered by NHS England's Information Standard quality mark. Find out how this resource was developed.