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Statement from the APPGBC regarding the decision to reject fulvestrant for routine use on the NHS
On 1 September NICE provisionally rejected fulvestrant (Faslodex) for post-menopausal women with hormone positive locally advanced or metastatic breast cancer that have not already had treatment with hormone therapy.
“We are disappointed to hear that fulvestrant has been rejected for routine use on the NHS by NICE. Although uncertainties remain around this drug’s overall survival benefit, fulvestrant can offer some women nearly three additional months of quality time before their breast cancer gets worse, compared to the current standard of care.
“It’s estimated that over a thousand women in England each year could be eligible for this treatment, and will unfortunately now miss out on the benefits of fulvestrant.
“It’s critical that new treatment options are found for this group of patients. Once better evidence for this drug’s overall survival benefit has been gathered, we would urge for it to be reappraised for NHS use.”
Statement from the Co-Chairs of the Breast Cancer APPGBC - Sharon Hodgson MP, Dr Philippa Whitford MP and Craig Tracey MP - on the news that Kadcyla will continue to be available to eligible women on the NHS
“The APPG welcomes the news announced that Kadcyla will now be offered by NHS England, which will now benefit the 1,200 women living with secondary breast cancer who rely upon this drug treatment. This follows the announcement earlier this year that NHS Scotland will provide Kadcyla, and the APPG hopes that Northern Ireland and Wales will follow England and Scotland and provide this drug to women with secondary breast cancer, so we see no disparity in the treatment women receive across the UK.
“Not only will this drug treatment help extend the lives of those women living with this terminal illness, but it will help to improve their quality of life too. This is why the APPG has campaigned on this issue, which included bringing key decision makers, policy makers and campaigners together to discuss a way forward to ensure the right outcome was reached for these women.
“This is absolutely the right decision and this outcome will offer a lot of peace and hope for the many women, along with their family and friends, who have had to live with a question mark over their future drug treatment. This announcement should be celebrated and congratulations must go to everyone for their hard work in fighting for this outcome.”
Statement from the APPGBC regarding the decision to make Kadcyla routinely available on the NHS in Scotland
The All Party Parliamentary Group on Breast Cancer (APPGBC) is delighted that Kadcyla will now be made routinely available in Scotland for the very first time.
This targeted drug represents a really crucial treatment option, offering patients with incurable breast cancer precious extra months – and in many cases, years – of good quality time with their loved ones.
Patients across the rest of the UK will now be waiting to hear whether they too will be able to access Kadcyla routinely on the NHS. Following this positive decision, we very much hope that NICE and Roche will now be able to reach a similar agreement to see this vital, life-extending drug made widely available south of the border.
Bi-monthly Officers’ Meeting, 23 November 2016
Breast Cancer Awareness Month Reception marks launch of inquiry into geographical inequalities
In October 2016, the APPGBC launched its new inquiry, 'A Mixed Picture: An Inquiry Into Geographical Inequalities and Breast Cancer,' at its Breast Cancer Awareness Month (BCAM) Reception in the House of Commons. We were delighted to be joined by over 100 MPs, Peers, civil servants, health professionals, patients, and charity representatives.
AGM: 14 September 2016
Breast cancer prevention debate
In April 2016 there was a lively debate held at Portcullis House, Westminster where experts from the breast cancer community spoke for or against the motion: ‘This APPG [All-Party Parliamentary Group] believes that more focus should be put on preventing breast cancer.’
A Mixed Picture
The APPGBC recently launched its new inquiry, A Mixed Picture: An Inquiry into Geographical Inequalities and Breast Cancer. You can find out more here.
Age is Just a Number: Parliamentary report into older people and breast cancer
More than half of breast cancer deaths in the UK are in women over 70, and by 2040, almost three-quarters of all women living with breast cancer in the UK will be aged over 65.
However, according to a report from the APPGBC, this patient population is not being adequately provided for.
In 2013, the APPGBC led an inquiry into older people and breast cancer with an aim to better understand the variations and barriers preventing all patients diagnosed with the disease having access to the services, treatments and care that benefits them most, regardless of their age.
The Age is Just a Number report laid out a series of key recommendations with a view to improving services specifically for this patient population, representing the culmination of the findings of the Inquiry.
Two years on, the APPGBC have reviewed the recommendations and published a progress report, Age is still just a number. While there are a number of areas where progress has been made, such as through new campaigns aimed at raising awareness of the disease in older women, the Group found that a lot of work still needs to be done.
In particular, the Group was disappointed that its recommendation to extend breast cancer screening age extension trials to women aged 74-76 has not been taken forward by Public Health England. Meanwhile, care and support for older women with breast cancer is still inadequate – the report argues for greater home support such as caring for dependents while someone needs treatment for breast cancer.
Now that the gaps in service provision have been identified, the Group will be playing an active role in following up its recommendations to ensure that all older breast cancer patients receive the care they need throughout the next parliament.
Get in touch
Breast Cancer Now provides the Secretariat to the APPG on Breast Cancer. Please contact firstname.lastname@example.org or call 020 7025 0088.
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