Stay in touch
We'd love to keep in touch about news, events and how you can get involved. To hear from us, please sign up below.
Updated: 18 May 2020
This guidance has been produced by the One Cancer Voice* charities in partnership with NHS England.
The Government is advising everybody to:
Do not leave home if you or anyone in household has symptoms of coronavirus.
Please refer in the first instance to wider Government guidance on:
The Government also have a wide range of information to help people at this time, including on employment, financial support, school closures and childcare. See: https://www.gov.uk/coronavirus
It is important that you seek clinical advice if you have a worrying symptom. GP surgeries have been advised to offer online consultations and remote triage so that people do not have to attend in person unnecessarily. Please contact your GP surgery directly if you are worried about a possible cancer symptom - for example, if you have any of the following symptoms for no explainable reason:
You can find a fuller list of the symptoms to look out for on the Be Clear on Cancer website.
If you have been asked to go to the hospital for further investigation, it is important that you attend. The NHS is reorganising the way that cancer diagnosis is delivered so that you can undergo diagnostic tests in places protected from the coronavirus. Because of that, you may be asked to self-isolate for seven days before any diagnostic procedures, even if you do not have coronavirus symptoms. You should discuss with the clinical team at the hospital if you have any concerns about attending.
Most people who go to their GP with symptoms do not have cancer. However, if you do have cancer, earlier diagnosis can mean more effective treatment and improved chances of survival.
If you have been asked to attend hospital, the only reason you should not go is if you have any symptoms of coronavirus. In this case, you should tell the hospital, cancel your appointment and self-isolate. The clinical team will discuss with you about when your appointment can be safely rescheduled.
People with certain cancers and those who have received or are receiving certain treatments are at risk of severe illness if they catch coronavirus (Covid-19). This includes:
Public Health England has published guidance for these people, and strongly advises them to rigorously follow shielding measures in order to keep themselves safe:
The NHS is writing to people in these groups with advice and information about what to do during this time, and where to access support. This advice will be in place until at least the end of June.
Please visit the Government website for more information regarding shielding advice.
If you are affected, and have a scheduled hospital or other medical appointment during this period, talk to your clinical team to ensure you continue to receive the care you need and determine which of these are absolutely essential.
1 This means before, during or after treatment, including those being managed expectantly.
2 When applying these criteria locally, clinicians should take into account the new Covid-19 NICE guidance on haematopoietic stem cell transplantation which states that patients should follow shielding advice:
Everyone who has received a letter advising that they are clinically extremely vulnerable should register online if you need any extra support. This may include having essential groceries delivered to your home or setting up regular calls with an NHS volunteer if you are experiencing feelings of isolation.
Information on the support available to people who are shielding can be found here.
The criteria for cancer patients were carefully defined, based on those with greatest clinical risk.
If you are unsure of your risk and what measures you should be taking, you should speak with your hospital specialist. If this is not possible, you should contact your GP.
The criteria for cancer patients were carefully defined, based on those with greatest clinical risk. Some cancer patients may receive a letter because they have other conditions that place them in the highest risk cohort.
We understand that the restrictions imposed by ‘shielding’ are difficult, both for you and for your family members and/or carers. Public Health England has issued ‘shielding’ guidance, strongly advising you to stay at home and avoid face-to-face contact until at least the end of June. This is the safest thing to do to protect you from illness/ complications of COVID-19.
However, this is guidance and whether you follow the guidance or not is a personal decision for you to make. You may decide, having weighed up the risks and the implications of ‘shielding’, that you do not want to follow the guidance. Before deciding, we would ask you to discuss the matter with your GP or hospital specialist and those that may provide care for you. This may be particularly relevant for patients who are receiving end of life care. Please do talk to somebody before you decide what to do.
If you are unsure of your risk and what measures you should be taking, you should speak with your hospital specialist. If this is not possible, you should contact your GP.
Some people may receive the letter more than once because they have more than one condition that places them in the highest risk cohort.
Some people may receive a letter from the central NHS point and their local clinical team or GP, as both have identified them as clinically extremely vulnerable.
Absolutely not. This is about identifying those people most at risk so they can take measures to protect themselves from developing serious illness from Covid-19. It is also about making sure they can access care and support during this time, including social care and help with practical needs such as getting medicines.
If you fall ill from COVID-19, or any other condition, and require treatment in hospital, you will still be treated as normal and will not be denied any medical intervention because you are in the ‘shielding’ group.
Essential and urgent cancer diagnosis, treatment and care will continue. NHS staff are working hard to make sure cancer treatments can continue in the safest and best possible way. To do this during the pandemic, there may need to be some changes to how treatments are delivered.
Changes are being made to the way services are delivered to keep patients and staff safe.
Some patients may start to see their treatment move to a different hospital as the NHS sets up ‘cancer hubs’ to coordinate treatment and ensure it can continue safely. The hubs support hospitals across the NHS and independent sector to work together to maximise capacity and ensure that people receive the treatment that they need. You will remain under the care of your treating hospital and clinical specialist team and should contact them with any questions about your treatment and care.
Your clinical team are best placed to talk with you about your treatment and appointments. They will work with you to determine the best course of action in each individual situation. If you have any concerns or questions about your treatment, please speak to your clinical team.
You should call the chemotherapy care line. If the chemotherapy care line is not available in your area, please speak to your clinical team about who you should call in this situation.
Your clinical team are best placed to talk with you about the effect on your treatment and appointments. They will work with you to determine the best course of action in each individual situation.
There is guidance on staying at home if you or someone in your household think you have coronavirus.
We understand that this may be a worrying time and you may find staying at home and having limited contact frustrating. At times like these, it can be easy to fall into unhealthy patterns of behaviour, which can make you feel worse. Simple things you can do to stay mentally and physically active during this time include:
You can find additional advice and support from Every Mind Matters and the NHS mental health and wellbeing advice website.
The NHS outlines the common symptoms of coronavirus on its website.
If you are experiencing symptoms of any infection or illness, including coronavirus, you should contact your cancer team know as you would normally. You can do this as well as calling 111 for advice about coronavirus symptoms.
It is not yet known whether reinfection is possible, although many experts think it is unlikely.
If your clinician is diagnosed with coronavirus and you have not seen them recently, then you are unlikely to have been exposed to coronavirus.
Health professionals are working to contact anyone who has been in close contact with people who have coronavirus. If you are concerned about the impact this will have on your treatment, contact your hospital for advice.
Please refer to the Government advice:
The NIHR has issued guidance on clinical trials, recognising the need to prioritise research on COVID-19 itself, and that many clinical research teams will be asked to redeploy to help with providing patient care.
“Given the scale of the COVID-19 challenge, we are encouraging clinical and academic health and care professionals funded by NIHR who are working on topics other than COVID-19 to prioritise frontline care where requested to do so by their employing organisations. This means that many research studies funded by NIHR or supported by NIHR (via the Clinical Research Network and other NIHR infrastructure) may need to be paused. In addition the NIHR Clinical Research Network is pausing the site set up of any new or ongoing studies at NHS and social care sites that are not nationally prioritised COVID-19 studies.”
People already having cancer treatment as part of clinical trials may be able to continue their treatment if it is safe to do so, but hospitals are trying to reduce the number of times patients attend for tests, so the arrangements for people on trials may be changed for safety reasons.
Some trials have stopped recruiting new patients. Where trials can continue they are being done so with reduced patient contact, for example by delivering medication directly to patients and following up by telephone or video rather than face to face appointments.
You should contact your clinical team with questions about your individual treatment including any trials you are part of.
This depends on the type of cancer and the treatment you have had. Most people make a full recovery after cancer treatment and their immune system either recovers fully or is not affected. (See Q3 response.)
Please refer to the wider Government advice to protect yourselves and family/friends:
The Government has asked parents to keep their children at home, wherever possible, and for schools to remain open only for those children who absolutely need to attend. Please see the Government guidance on school closures.
If your child with cancer falls into any of the extremely vulnerable groups outlined in Q3, they should follow the measures to ‘shield’ themselves. Siblings, family members and/or others living in the same household as the child should stringently follow guidance on social distancing.
If your child with cancer is not in one of the extremely vulnerable groups and you feel you need to send them to school (e.g. you are a key worker), please seek advice from the clinical team overseeing your child’s care.
There is currently no vaccine for this form of coronavirus. Research is being done to develop a vaccine, but this will take many months.
There are currently no medicine shortages as a result of COVID-19. The country is well prepared to deal with any impacts of the coronavirus and we have stockpiles of generic drugs like paracetamol in the event of any supply issues.
The Department of Health and Social Care is working closely with industry, the NHS and others in the supply chain to ensure patients can access the medicines they need and precautions are in place to prevent future shortages.
There is no need for patients to change the way they order prescriptions or take their medicines. Patients should always follow the advice of doctors, pharmacists or other prescribers who prescribe and dispense their medicines and medical products. The NHS has tried-and-tested ways of making sure patients receive their medicines and medical products, even under difficult circumstances. If patients order extra prescriptions, or stockpile, it will put pressure on stocks, meaning that some patients may not get the medicines or medical products they need.
Please see these FAQs for more information regarding shielding advice and letters, including the process for contacting people who are highest risk, how to access support, and what to do if you are living with someone who is shielding.
Only patients undergoing active chemotherapy for lung cancer?
No. Everyone undergoing active chemotherapy is included.
Patients who have received chemotherapy in the past three months?
People’s immunity remains compromised for some time after finishing chemotherapy and clinical teams will be aware of this when considering their highest clinical risk patient lists.
If you have completed chemotherapy in the last 3 months, please contact your care team to discuss your specific circumstances. In the meantime, you should follow the Public Health England guidance on ‘shielding’ - in summary, stay at home and avoid face-to-face contact until at least the end of June.
Patients with blood disorders who are immunocompromised but not receiving chemotherapy?
Yes. These patients are included within ‘people with cancers of the blood or bone marrow such as leukaemia, lymphoma or myeloma who are at any stage of treatment’.
Patients having radiotherapy for metastatic lung tumours?
Yes. These patients are included within ‘people with cancer who are undergoing radical radiotherapy for lung cancer’.
Patients with metastatic cancer in the lungs who are not currently receiving treatment?
People with metastatic cancer in the lungs could be more vulnerable and therefore at highest clinical risk from Covid-19. Vulnerability will depend on the type of cancer and treatments that you have had.
If you have not received a letter, please contact your care team to discuss your specific circumstances. In the meantime, you should follow the Public Health England guidance on ‘shielding’ – in summary, stay at home and avoid face-to-face contact until at least the end of June.
Patients having any targeted treatments (more than just antibody treatments)? Would anti-angiogenesis targeted drugs fit into that?
Yes, all these treatments carry excess risk and therefore people receiving these treatments would be included. These patients are included within ‘people having other targeted cancer treatments which can affect the immune system, such as protein kinase inhibitors or PARP inhibitors’.
Transplant patients?
Yes, if they have had a transplant within the last 6 months, and if they are taking any immunosuppression. These patients are included within ‘people who have had bone marrow or stem cell transplants in the last 6 months, or who are still taking immunosuppression drugs’.
Patients autologous as well as allogeneic transplants in the last 6 months?
Yes.
All patients with rare diseases?
No, how rare the disease is not relevant. The issue is whether the disease significantly increases the risk of infection. If a patient has a rare disease and that disease significantly increases their risk of infection, they will be included in the category of extremely vulnerable people.
*The following charities have developed this guidance in partnership with NHS England:
Anthony Nolan, Bloodwise, Bowel Cancer UK, The Brain Tumour Charity, Brain Tumour Research, Brains Trust, Breast Cancer Now, Cancer 52, Cancer Research UK, Jo’s Cervical Cancer Trust, Leukaemia Care, Leukaemia UK, Lymphoma Action, Macmillan Cancer Support, Myeloma UK, NCRI, Ovarian Cancer Action, Pancreatic Cancer UK, Prostate Cancer UK, Roy Castle Lung Cancer Foundation, Sarcoma UK, Target Ovarian Cancer and Teenage Cancer Trust.