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Patients, carers, healthcare professionals and researchers have come together to highlight the most pressing unanswered questions in breast cancer surgery. These questions will become the basis for new research to move forward breast cancer care and to benefit current and future patients.
Breast Cancer Now supported a Priority Setting Partnership led by the Association of Breast Surgery and the James Lind Alliance to define the most urgent unanswered questions in breast cancer surgery.
A Priority Setting Partnership is a way to give people affected by breast cancer and at high risk of developing the disease a louder voice in research. Through this partnership, people with breast cancer, their carers, family members and healthcare professionals defined the top 10 questions about breast cancer surgery that they most want answers to.
These questions will be shared with the research community and research funders in the UK to guide new research projects.
These are the top 10 questions that urgently need research to answer them:
These questions are the result of a thorough process of enquiry and prioritisation that Breast Cancer Voices had a chance to take part in.
The Priority Setting Partnership first ran a survey that asked patients, families and healthcare professionals to submit their questions about breast cancer surgery. Around 260 people took part, sending in 940 questions in total.
These questions were then reviewed for duplication. They were also categorised and checked to ensure they had not already been answered through existing research. The result was a list of 59 summary questions that need to be researched further.
The next stage of the process was a second survey, asking people to choose the questions that they think are the most important to answer. It was completed by 572 individuals. The most highly ranked questions from this survey were taken to a final workshop with 22 patients, carers and clinicians discussing and ranking the questions to determine the top 10.
These research priorities were presented at the recent Association of Breast Surgery Conference in Liverpool and will soon be published in a research paper so that they can inform new research projects.
Breast Cancer Now will be asking researchers applying for its funding to take into account how their research is progressing our understanding in these 10 priority areas.
Find out about opportunities to use your voice by joining our Breast Cancer Voices community. Researchers need you for your voice and experience, so be sure to check out opportunities to participate.