What needed to change

Women with incurable secondary breast cancer have no time to lose. They need access to the drugs that can help them live well for longer. But in 2017, one of the most effective secondary breast cancer drugs was under threat of being removed from the NHS. Devastatingly, Kadycla’s appraisal by the National Institute for Health and Care Excellence (NICE) was provisionally rejected. This meant that patients who needed the drug in the future would no longer be able to get it on the NHS. 

What you helped us do

On the 29 December 2016, we launched a petition calling on Roche and NICE to do everything in their power to keep Kadycla available.

115,898 of you signed our petition.

Together our support for keeping Kadcyla available meant the story hit the headlines on Sky, the BBC, the Evening Standard, Mumsnet and Victoria Derbyshire. 

On 24 January 2017, we delivered our petition to NICE and Roche.

A Backbench Business Committee Debate was scheduled on ‘Access to Kadcyla and other breast cancer drugs’. We asked you to email your MP telling them to attend.

On Thursday 26 January, 21 MPs including Siobhan McDonagh MP, Sir Desmond Swayne MP and the then Parliamentary Under Secretary of State for Health Nicola Blackwood, contributed to an informed and passionate debate.

What we achieved together

Thanks to you, the lifeline drug was approved for routine use on the NHS. Every one of your tweets, letters and signatures means around 1,200 women a year with incurable secondary breast cancer will now be able to receive Kadcyla in England.

What’s next?

We will continue to work to ensure effective breast cancer drugs can reach patients on the NHS. This includes making sure the patient voice is heard during the assessment of treatments by the National Institute for Health and Care Excellence (NICE) and the Scottish Medicine Consortium (SMC). If you want to be part of future campaigns supporting breast cancer patients to access the drugs they need to live well, sign-up to receive our updates. You’ll be the first to hear about ways to take action to make things better for people affected by breast cancer.

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