Complete a survey about caregivers’ experience of cancer appointments

What’s the title of the study?

A Delphi Study To Understand Caregivers Experience Of Cancer Healthcare Appointments.

What’s the project about?

Friends and family play an important role when someone is diagnosed with cancer. They can help the person diagnosed get the information they need, attend appointments and give them important emotional support. They can also give the medical team more information about the person diagnosed, which helps them plan treatment. 

In this study, researchers want to understand the experiences of caregivers of people living with cancer during their healthcare appointments. They want to understand more about their interactions with healthcare professionals, and whether they feel valued and included in the appointments. 

Who’s organising it?

Name of project lead: Kavita Jassal

Job title: Trainee Clinical Psychologist

Organisation: University of Exeter

Email address: kj405@exeter.ac.uk

Who can take part?

You can take part if you:

• Are over 18 years old
• Have supported a friend or loved one with cancer in the past 3 years 
• Have attended at least 3 healthcare appointments with someone you care for who is living with cancer

Why do you want me to be involved?

You can help the researchers understand whether carers are being properly listened to and valued by healthcare professionals. 

The researchers hope that this can help them develop advice for healthcare professionals, and develop more holistic care for people with cancer and their carers. 

What will you ask me to do?

This study is split into 3 rounds. 

Round 1 includes an online questionnaire which will ask about your experience in healthcare appointments. This should take around 20-30 minutes.

You can choose to continue to take part in the study, you’ll sent 2 more short surveys at a later date. These surveys will ask you to read some statements and rate whether you agree or disagree.  They should take around 5 minutes to do. 

By taking part in round 1 you do not need to take part in rounds 2 or 3. For each round that you participate in you will have the option to be entered into a prize draw to win one of 3 £10 vouchers.

How do I get involved?

If you’re interested in taking part, please complete the first questionnaire. The participant information sheet and consent form are at the beginning of the survey. 

If you would like more information or guidance on how to access the questionnaire, please email kj405@exeter.ac.uk

When’s the deadline?

13 July 2025