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Thank you for registering for the Living with Secondary Breast Cancer group. We’re really looking forward to meeting you when you join us for the group. To help you get ready, we’ve compiled a list of common questions and answers.

Do I need to bring anything?

No, just get as much out of the group as you can and participate as much or as little as you like.

What can I expect?

These groups are relaxed and offer time to talk about what’s on your mind with others who understand from around the UK. Each group is facilitated by one of our experienced counsellors who will welcome you when you join.

We encourage you to share your experiences with people who'll understand what you're going through. But if you don’t want to share anything, that's completely fine, and you can just listen. Have a look at this short video where Paula talks about her experiences coming to a group for the first time and why she finds it so helpful. Our in-person groups aren't group therapy session, and we don’t offer individual medical care or advice.

If you feel daunted about attending for the first time you may find it useful to have a chat with the group facilitator before you attend. If you'd like to speak to them, please let us know by contacting us on secondaryservices@breastcancernow.org or 0345 077 1893. They will call you from a withheld number and if they are unable to reach you on the first try, they will attempt to call you two more times.

How many people will be at the group?

The groups typically have around 6 to 12 people for both in-person and online sessions. But sometimes have more, sometimes less. 

What topics will we cover?

We often talk about everyday issues and how secondary breast cancer impacts daily life. Sometimes, we cover themes that may be difficult. But our counsellor is there to support everyone.

Every three months or so, we invite an expert speaker to talk about a topic which is relevant for people living with secondary breast cancer. Topics include things like fatigue, exercise, managing side effects and relationships and communication.

Are the groups confidential?

Yes. Our groups are a confidential, safe space for you to be as open as you like. Everyone in the group will be reminded to keep the discussions confidential.

Is the venue accessible?

Our groups are in venues with easy road links and bus routes.

All venues are accessible with:

  • Accessible toilets
  • Car parking on-site or close by with disabled spaces
  • Located on the ground floor or the first floor via a lift

If you need more support from us to take part in our services, we’ll do our best to make reasonable adjustments. If you need further assistance, contact us at secondaryservices@breastcancernow.org or 03450771893.

Is there financial help accessing the service?

Our services are always free, thanks to our generous supporters. But we know that using one of our services might still cost you money, like travel costs. We’re committed to supporting everyone affected by breast cancer to live well. So, if you need help covering the costs of using our services, we’re here. Please contact secondaryservices@breastcancernow.org and ask about our access fund.

What do other people say about our Living with Secondary Breast Cancer group?

I always look forward to meeting the other ladies in my local area that have the same diagnosis. Some of us have become really good friends. I message others from the group to see how they are doing. The group is held in a very lovely location which is very calming to visit

I love my facilitator’s relaxed and caring style. The group is also very supportive of each other

There is nothing like meeting others in a similar situation and sharing information or just chatting.

Do I have to attend every single group?

No. You can come to as many or as few as you'd like to. We totally understand that you might not feel up to coming along for whatever reason. If you could let us know that’d be great, but don’t worry if you can’t. We won’t get in touch to ask where you were.

Can I bring someone?

Living with Secondary Breast Cancer groups offer a confidential space just for people who are living with secondary breast cancer to share this experience with others in a similar position.

Will my employer give me time off to attend?

If you're working, your employer should allow you time to attend. Please contact us if you're experiencing any difficulties, and we can provide you with a letter to give to them.

Are there refreshments?

We provide tea, coffee, water and biscuits. If you have any dietary requirements, let us know when you register so we can make sure we cater for them.

Will a healthcare professional be there?

We don’t typically invite healthcare professionals to the groups. The sessions are an opportunity for you to speak openly with people who are in a similar situation.

We may invite them to one of our quarterly expert speaker sessions or ask if they'd like to observe a session so they can promote the service. We’d let you know before through your monthly invitation email.

Occasionally, a member of our services delivery team might also attend a session to see how the group is getting on and to gather any feedback.

I'm aged 45 or under and living with secondary breast cancer – will there be others my age at the group?

It depends on the group. Sometimes there’ll be a few other younger women, and sometimes there might not be any. You’re more than welcome to attend any group.

If you'd like to attend a group just for younger women, we also hold a Living with Secondary Breast Cancer group for Younger Women online. It's a chance to meet women you're age who are going through similar experiences.

I have another question, can you help?

If you have more questions, please reach out to our Living with Secondary Breast Cancer team at secondaryservices@breastcancernow.org or call us on 0345 077 1893

 

Welcome Guide

  • To help keep to time, please join each group promptly. 
  • The facilitator may sometimes need to move the discussions on to make sure that everyone has time to share. 
  • To help maintain a quiet environment during the group, please turn off your mobile phone or keep it on silent. 
  • Keep your valuable items and any medication you need with you. Breast Cancer Now cannot be held responsible for your personal belongings. 
  • Sometimes these groups may bring up themes and feelings that you find difficult. If you need to take a break or leave the group at any time, just let the facilitator know. If you do leave unexpectedly, Breast Cancer Now may get in touch with you to make sure you’re okay.  

Breast Cancer Now’s groups bring together a diverse range of people with different experiences. These groups aim to provide a safe space where you can talk freely and share your thoughts and feelings if you wish to do so.  

To help you and everyone at the group to feel comfortable, we ask for your cooperation to follow these guidelines:  

  • Anything said in the group will remain strictly confidential. Please don’t share any specific or identifying information outside of the group. 
  • Respect the views of others in the group and don’t impose your beliefs on anyone. 
  • We encourage you to listen actively to others.  

In the unlikely event that any behaviour in a group is deemed inappropriate or upsetting to others, the facilitator will intervene as appropriate.   

If you’d like further support after a group or just want to talk things through, our specialist breast care nurses can be reached by calling our free helpline on 0808 800 6000 between Monday to Friday 9am to 4pm and Saturday 9am to 1pm. 

The facilitator:

  • Can’t enter one-to-one relationships or provide services to individuals with group members outside of the group 
  • Isn’t medically trained 
  • Might signpost you to other appropriate support if we feel that the groups aren’t supporting you  

Your details and information will be kept private and confidential within Breast Cancer Now. The facilitator may share information with the secondary breast cancer team in order for us to support you.  

There are some exceptional circumstances the facilitator or secondary breast cancer team may pass on personal information outside of Breast Cancer Now, for example:  

  • If we believe someone is at serious risk of harm, either from themselves or others 
  • A service user acts in a threatening or abusive way 
  • If we receive a court order requiring us to divulge information 
  • If we are passed information relating to an act of terrorism  

If you would like to find out more about how we use your information, you can view our Privacy Policy on our website here: breastcancernow.org/privacy-policy. 

Groups and speaker sessions don’t provide: 

  • Formal group therapy  
  • Individual support, medical advice or care 
  • A substitute for your professional medical care  

If you have any concerns about your condition or treatment, please check with your medical team.  

If you do have a concern or complaint about our services, a Breast Cancer Now volunteer, group facilitator or a member of staff, please do talk to us. You can do so by contacting secondaryservices@breastcancernow.org

Alternatively, you can view our Complaint Policy here: breastcancernow.org/complaints-policy.

We’ll ask for your feedback in our annual evaluation – what you like, and what you think could be better. But if you have anything else you’d like to let us know in the meantime we always appreciate your feedback – just get in touch.

Please get in touch if you require any of the information in this document in printed format.