How can you be told you have a life limiting illness and have NO support?Jo, living with secondary breast cancer
We are campaigning to improve access to specialist support for people living with secondary breast cancer, which is incurable but can be treated. We know that people with this disease often experience inferior care to those with a primary breast cancer diagnosis.
We are calling for the creation of a Secondary Support Package to ensure everyone with secondary breast cancer has access to vital, specialist support. We are asking politicians to add their name to show their support for the creation of this package of support.
We will then write to health ministers across the UK, calling on them to commit to a Secondary Support Package, and include the names of politicians that have shown their support.
Read the letters we will be sending out below.
Letter to the Secretary of State for Health and Social Care (Westminster)
Letter to the Cabinet Secretary for Health and Sport (Scotland)
Letter to the Secretary of State for Health and Social Care (in reference Northern Ireland)
Letter to the Cabinet Secretary for Health and Social Services (Wales)
Our latest research shows that people are left to cope alone
- 72% of hospital organisations in England, Scotland and Wales do not give people access to a dedicated secondary breast care nurse.
- 2/5 hospital organisations across the UK could not tell us how many secondary breast cancer patients are currently under their care.
- 70% of hospital organisations across the UK do not assess people’s emotional and physical needs when diagnosed and as their treatment changes.
The Secondary Support Package
We want every patient to have:
- Access to a designated Clinical Nurse Specialist with appropriate skills, knowledge and experience of secondary breast cancer, and specific time and resource to support them.
- Their emotional, physical and information needs discussed with a healthcare professional through a Holistic Needs Assessment at the point of diagnosis and as treatment changes.
- A treatment summary at the end of each significant phase of treatment.
- A referral to a tailored health and well-being service which includes psychological support and opportunities to meet others with secondary breast cancer.