At Breast Cancer Now, we know that many people with incurable secondary breast cancer experience delays in diagnosis, struggle to access the support of a specialist nurse and fear they won’t be able to access the treatment they need in the future.
This can’t go on.
That’s why we launched our Unsurvivors campaign, which highlights that 11,500 people still die from breast cancer every year in the UK and demands urgent change so that everyone with secondary breast cancer can live well for as long as possible.
We're still pushing for change
Over 70,000 people have already backed the campaign, adding their names to our call for UK Health Leaders to take action.
Thanks to their support, we are already seeing progress on some of the key campaign calls around diagnosis and data. We’ve also be able to discuss the campaign directly with Secretary of State for Health and Social Care, Matt Hancock, and Scottish Cabinet Secretary for Health, Jeanne Freeman.
We are continuing to push for change focussing on specific issues that affect the treatment and care of people living with secondary breast cancer.
We asked over 2,000 people with secondary breast cancer about their experiences. Here's what they told us.
23% had to see their GP three or more times before they were diagnosed.
One in six said they didn’t feel confident they would have access to the most appropriate drug treatments in the future.
A quarter said they had not seen a Clinical Nurse Specialist since diagnosis.
Until we're seen. Until we're heard. Until we're known. Until things change.
Our letters to politicians
Scottish party letter
Ahead of the Scottish Elections 2021, we wrote to the leader of political parties setting out our urgent recommendations.
Welsh party leaders
Ahead of the Senedd Elections 2021, we wrote to the leaders of the main political parties in Wales setting out our urgent recommendations.
To mark a year since we handed our petition calling for urgent action to improve treatment and care, we wrote to Jo Churchill, Cancer Minister, to outline the changes that are still needed.
My world collapsed when I was diagnosed with secondary breast cancer. While we are here and breathing, it is not too late to make an impact and influence change.
Jo, diagnosed with secondary breast cancer in 2016