Informing research into shared decision-making in cancer care

What’s the title of the study? 

Shared decision-making in cancer care: Testing questionnaires in English.

What’s the project about? 

As part of a European clinical project in cancer care, researchers are exploring how people make decisions about their treatment.  

One of the surveys they’re using has been recently translated to English, but it still needs to reviewed. The researchers want to make sure the language is clear, understandable, and suitable for use with native English speakers.

The researchers are looking to get feedback from people who’ve been diagnosed with cancer about the surveys.

Who’s organising it? 

Name of project lead: Dr Laura del Carpio 

Job title:  

Organisation: Sant Joan de Déu Research Foundation and Christie NHS Foundation Trust 

Email address: laura.delcarpio@sjd.es 

Phone number: +34 936406350 (Ext. 12761) 

Who can take part? 

You can take part if you’re a native English speaker and have had a breast cancer diagnosis, including:

• DCIS 
• Stage 2 or 3 primary breast cancer  
• A local or regional recurrence of primary breast cancer  
• Secondary breast cancer  

And, you have experience with cancer treatment decision-making  

You don’t have to have any previous experience of research.  

Why do you want me to be involved?  

You will help ensure that the translated questionnaires are clear, culturally appropriate, and relevant for a UK audience.

What will you ask me to do? 

You’ll take part in a 1-to-1 call, either online via Teams or Zoom, or by telephone.  

During the call, you’ll be asked to review the survey and share your feedback. You’ll read the questions and response options out loud, and give feedback on the wording, and anything to improve.

The call will take place between March and May 2025, at a time that’s convenient for you.  
 
There’s also an option for the researchers to contact you in the future, if the survey needs significant changes.

How do I get involved? 

You can find out more information by reading the participant information sheet and consent form. 

If you’d like to take part, or to find out more information, you can contact the team at laura.delcarpio@sjd.es. You can also call +34 936406350 (Ext. 12761) (please note: international call rates may apply). 

When’s the deadline? 

5 April 2025