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1. What is cognitive impairment?
2. What causes cognitive impairment?
3. Symptoms of cognitive impairment
4. Coping with cognitive impairment
5. Cognitive impairment and work
6. Further support
During and after breast cancer treatment, you may find it difficult to concentrate or feel more forgetful. This is sometimes called ‘chemo brain’ or ‘brain fog’.
Although it’s commonly called ‘chemo brain’ it can affect anyone going through cancer treatment even if they do not have chemotherapy. Your treatment team may call it cognitive impairment.
Cognitive impairment usually improves over time, but for some people it can continue, especially if the treatment causing it is ongoing.
Having difficulty concentrating or remembering things can affect your daily life.
It’s not known exactly what causes changes to memory and concentration following cancer treatment.
Some experts think chemotherapy may speed up the normal ageing process.
There’s some evidence hormone therapies, such as letrozole, can also cause symptoms of cognitive impairment. The evidence for this is mixed and more research is needed to understand the causes.
Other factors may contribute to cognitive impairment, such as:
Symptoms vary from person to person and can come and go.
You may notice these in day-to-day activities or they may not be obvious.
Some common symptoms include:
If you have these symptoms talk to your treatment team. They can assess you and provide support to help manage and improve them.
There’s limited evidence about whether particular medicines will help improve cognitive impairment, and research is ongoing. Unless you’re taking part in a clinical trial it’s unlikely you will be prescribed any medicine.
However, there are some things you can do to help manage your symptoms:
It can help to talk to people about cognitive impairment and how it’s affecting you. They may be able to offer support and practical help, such as food shopping and meal planning.
Lifestyle factors, such as difficulty sleeping or stress, can also make the symptoms of cognitive impairment worse. Talk to your treatment team about how to manage these.
Some people find different brands of treatments, such as hormone therapies, can make cognitive impairment better or worse. You could keep a record of the brand you’re prescribed and symptoms you get. If you find a brand that suits you, you could ask your GP or pharmacist if you can continue to have this.
Some people find CBT (cognitive behavioural therapy) helpful. CBT is a talking therapy that can help you change patterns of thinking and behaviour. You can find out more about CBT on the NHS website.
As cognitive impairment can affect your memory and concentration, you may find it difficult to carry out your usual role at work. This can lead to you feeling stressed, which can make the symptoms worse.
If you’re worried about work or returning to work, speak to your employer about reasonable adjustments – such as a temporary change to your work hours or more regular breaks.
Occupational health services might help employees who have cognitive impairment. Your human resources team or manager may be able to tell you about these and suggest other sources of support.
If you’re self-employed, you can call Macmillan Cancer Support on 0808 808 00 00 to find out what support is available. They also have information on self-employment and cancer.
Cognitive impairment can be difficult to cope with, and many people feel frustrated and as if they’re not in control.
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