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Involve people affected by breast cancer in your work

Find out about Breast Cancer Voices and how they can support your project.

1. Who are Breast Cancer Voices?

Breast Cancer Voices brings the voices of people affected by breast cancer to the heart of policy, research and care. 

Our community has over 1,600 members across the UK. It includes:

  • Current and former primary breast cancer patients

  • People living with metastatic breast cancer

  • People who've cared for someone with, or lost someone to, breast cancer

  • Those who've engaged with family history services

They get involved in research, PPI and other projects to use their experiences and create change. 

Lived experience is so vital to give researchers insights. I was delighted to be involved in this project and I know my insight will lead to positive results.

Breast Cancer Voices member

2. How does it work?

We can support you to recruit participants for your project by sharing an advert in our monthly bulletin. 

We post approved research studies on our public research studies noticeboard. PPI and other opportunities are shared on our private Voices noticeboard.

All of the month’s opportunities are shared in the bulletin on the fourth Tuesday of every month.

We may also be able to identify specific individuals or groups to approach more directly – for example, if you need a patient expert speaker.

Voices participants have shaped our findings, and how we approach the next stages of our work.

Dr Emma Davies

3. Where do I start?

Read our Voices engagement guidance and terms for more information about:

  1. What we can and can't help with

  2. Our deadlines and lead times

  3. The documents you'll need to provide

  4. What we expect from you

Then complete our engagement request form with the details of your project. 

We usually need around 3 weeks’ notice ahead of the bulletin mailout date.

Get in touch if you have any questions or would like more information about how we can support you. 

Working with Breast Cancer Now has not only provided high quality, accessible PPI, but also enriched my experience as a health care professional and researcher - creating new opportunities to work with our stakeholders, promote my profession, and interact with patient experience outside of my routine clinical practice.

Sairanne Wickers
Consultant breast radiographer at University College London Hospitals (UCLH)

4. Other sources of support

External resources

We can't offer advice or support with PPI beyond advertising. But you may find these sources useful:

Contact us

Please get in touch if you need help with the form, or to discuss your requirements.

Email us