In this section
We’re Breast Cancer Now, the charity steered by world-class research and powered by life-changing care.
Our Breast Cancer Voices bring the voice of people affected by breast cancer into the heart of UK-wide policy, research and care.
They participate in research studies, take part in Patient and Public Involvement (PPI) opportunities. And they use their voices in many other ways to create change.
1. Who are Breast Cancer Voices?
The community of over 1,200 members is made up of people whose lives have been changed by breast cancer, who want to use their experiences to make a difference for others.
The community includes:
- Current and former primary breast cancer patients
- People living with secondary breast cancer
- People who've cared for someone with, or lost someone to, breast cancer
- Those who've engaged with family history services
2. How can they help?
We share approved research studies on our public research studies noticeboard. PPI and other opportunities are shared on our private Voices noticeboard.
All of the month’s opportunities, along with updates and case studies, are shared on the fourth Tuesday of every month in our Voices bulletin.
You can look at an example of a previous bulletin to see what we share.
Occasionally, we may be able to identify specific individuals or groups to approach more directly – for example, if you need a patient expert speaker.
3. Where do I start?
Read our Voices engagement guidance and terms for more information about:
- What we can and can't help with
- The different ways we can contact the right people for you
- Our deadlines and lead times
- The documents you'll need to provide
- What we expect from you
Then simply complete our engagement request form with your details, copy and documents. We usually need around 3 weeks’ notice ahead of the bulletin mailout date.
4. Other sources of support
Useful sources
We can't offer advice or support with PPI beyond advertising. But you may find these sources useful:
UK Standards for Public Involvement in Research
Open in new WindowPublic co-applicants in research
Guidance on roles and responsibilities, the National Institute for Health and Care Research (NIHR)
Open in new WindowPayment guidance for researchers and professionals
Payment and recognition for involvement, the National Institute for Health and Care Research (NIHR)
Open in new WindowContact us
Please get in touch if you need help with the form, or to discuss your requirements.