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1. Breast Cancer Now resources
2. External resources
3. Services and useful organisations
1. Breast Cancer Now resources
- Family history and breast cancer (web information)
- Family history: assessing your breast cancer risk (web information)
- Genetic testing for altered breast cancer genes (web information)
- Family history of breast cancer: managing your risk (print booklet)
2. External resources
- Familial breast cancer: classification, care and managing breast cancer and related risks in people with a family history of breast cancer (NICE)
- Decision aids for women considering drug treatment to reduce their risk of developing breast cancer (NICE)
- Familial breast cancer report (Healthcare Improvement Scotland)
- Short, useful summaries to support your clinical decisions when considering genomic testing (NHS)
- A beginner’s guide to BRCA1 and BRCA2 (The Royal Marsden)
- Understanding risk-reducing breast surgery (Macmillan booklet)
3. Services and useful organisations
Someone Like Me service
Breast Cancer Now's Someone Like Me service can put people at high risk of breast cancer in touch with people going through a similar experience
Breast Cancer Now's Helpline
If your patients are concerned about a family history of breast cancer or just want to talk things through, our specialist team are ready to listen
BRCA Link Northern Ireland
Based in Northern Ireland, helping BRCA gene carriers access information and support.
BRCA Chat
A charity that aims to help anyone navigating a BRCA (or other) gene mutation.
FORCE (Facing Our Risk of Cancer Empowered)
For individuals and families with an altered gene or at high risk of breast and ovarian cancer. Based in the USA, but has a UK support network.
Genetic Alliance UK
Works to improve the lives of patients and families affected by all types of genetic conditions.
British Society for Genetic Medicine
List of genetic clinics in the UK.
Macmillan Cancer Support
Provides inormation about family history, genetics and cancer risk.
PALB2 interest group
Arranges information sessions for people who have an altered PALB2 gene.
UK Cancer Genetics Group
The CGG is a national, multidisciplinary organisation. Peope with an interest in hereditary predisposition to cancer including clinicians, genetic counsellors, clinical scientists and researchers are invited to join.